Treatment For Myopathy In Tirunelveli District

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JEEVAN FOUNDATION

[ MAYOPATHY Institute of Muscular Dystrophy & Research Centre in Veeravanallur-627426 ,Tirunelveli (Nellai) district ]  

Address: 

MAYOPATHY Institute of Muscular Dystrophy & Research Centre(Unit of JEEVAN FOUNDATION),Railway Feeder Road, Veeravanallur, Ambai(TK),Tirunelveli. Tamil Nadu, India..Tel: +91 4634 288 653 / 654

Mail: help@jeevanfoundation.com

Contact Person Details

Dr. Ajay N +91 98843 23123

Mrs. Vasanthi Babu +91 98412 12442

Mr. Anand Jayaraman +91 98842 25842

Head Office: 9, Shanmugam  Street, Royapettah, Chennai-600 014. Tamil Nadu, India. Tel: +91 44 – 2847 4400 / 2835 2501 / 2835 2901.Mail: help@jeevanfoundation.com

Information Centre : 9th Floor, Gee Gee Crystals, # 91 Dr.Radhakrishnan Salai,Mylapore, Chennai – 600 004.Tel:+ 91 44 2811 6960 / 61 / 62,  Fax:+ 91 44 2811 6964

Nepolian's jeevan foundation for myopathy treatment in veeravanallur, Tirunelveli district , Tamilnadu

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 jeevan foundation (mayopathy institute of muscular dystrophy & research centre ) in veeravanallur , Tirunelveli district of tamilnadu, State of India

Services of Jeevan foundation:

1. What is Muscular Dystrophy? Muscular Dystrophy (abbreviated MD) refers to group of hereditary muscle diseases that weaken the muscles which move the human body. It is characterized by progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissues.

Types of Muscular Dystrophy MD is of nine types, which include Duchenne, Becker, limb girdle, confenital, facioscapulohumeral, myotonic, oculopharyngeal, distal, and Emery-Dreifuss. Duchenne MD is the most common and severe form affecting children. It is a genetic defect leading to the formation of an abnormal type of muscle protein called dystrophin. Symptoms of Muscular Dystrophy Progressive muscle degeneration, weakness, and loss of function in Duchenne’s MD, delayed development of basic muscle skills and coordination in children are the certain symptoms of muscular dystrophy. Common signs include poor balance with frequent falls, waling difficulty with waddling gait and calf pain, limited range of movement, obesity, joint contractions, cataracts, frontal baldness, drooping eyelids, gonadal atrophy and mental impairment.

Diagnosis for Muscular Dystrophy

The diagnosis of MD is based upon a combination of a characteristic clinical presentation and the results of muscle biopsy

Treatment for Muscular Dystrophy

There is no specific treatment to prevent or cure halt MD. Physical therapy, exercise, orthopedic appliances (such as braces and wheelchairs), or corrective orthopedic surgery may help to preserve muscle function and prevent joint contractions as much as possible and improve quality of life. Steroids have been used to slow diseases progression, but do not effect the final outcome. Identification of the specific genes responsible for the various types of MD has led to extensive research on gene and molecular therapy, but all such treatments are still experimental

2. Physiotheraphy

Physiotherapy to treat Muscular Dystrophy has proven effective to the point of allowing people to retain use of their deteriorating muscles for a longer period of time and allowing them to do every day activities. For children, who are diagnosed with this dreadful disease, physiotherapy plays an important part in preventing scoliosis, which is curvature of the spine. Through physiotherapy techniques, exercises and treatments, children diagnosed wit Muscular Dystrophy who seek physiotherapy to treat Muscular Dystrophy early on have a better chance of walking for a longer period of time and minimizing joint contractions, 

3. Hydroptherapy

“Water is a great medium. In a pool, people with neuromuscular disease can move and do what they can’t ordinarily do on land,”. the magical properties of water will enable any one to perform muscle strengthening exercises without the jarring impact felt on land. Water exercise will help reduce water retention, increase circulation, limber and strengthen muscles, increase balance, and provide an aerobic workout. Additionally one can improve muscular strength reduce atrophy regain use and control of limits to stay active longer

4. Occupational Therapy

Occupational therapy assists the individuals with MD in engaging in their activities of daily living (self-feeding, self-care activities, etc) and leisure activities at the most independent level possible. This may be achieved with use of adaptive equipment’s or the use of energy conservation techniques. Occupational therapy may implement changes to a person’s environment. both at home or work, to increase the individual’s function and accessibility. Occupational therapists also address psychosocial changes and cognitive decline which may accompany MD, as well as provide support and education about the disease to the family and individual.

5.Counselling

At Mayopathy Unit of Jeevan Foundation, we have specialized counsellors who understand the psychology of child and give them emotional support. Our counsellors are experienced therefore; ensure results are achieved by applying the right technique.

“Every child you encounter is a divine appointment.” This famous quote was said by Wess Stafford, President, Compassion International. Special kids always gain their own values, world and fantasies. At Jeevan foundation, we ensure each child has its own space to mingle, own choices and preferences. Our well-trained staff and educated trainers spend their valuable time with these kids and mould them in the finer way. Join hands with us today to see a better future for these special kids.

About Foundation

Jeevan foundation was established in 2006, as a registered non-profit trust (registration no is 2057/2006, under Tamil Nadu Trust Act) the trust was established by the like minded people with the objectives of promoting all activities essential for the empowerment of Physical, Mental, Social, Economical and Educational status of the weaker sections of the society including destitute, persons with disabilities and persons suffering from various health hazardous.

Jeevan Foundation will supports and strengthens the vulnerable and underprivileged sections in the society irrespective of rural and urban for transforming the quality of life through technology. It is committed to leveraging the power of IT to bridge the ‘digital divide’ that limits opportunities for success and prosperity, and thereby, transform lives of the underprivileged. All the initiatives of the Foundation are targeted towards the urban and rural disadvantaged population in the society.

Foundation provides special thrust on sustainable agricultural, social economical and cultural development of the members along with empowerment of Vulnerable and Marginalized people in the Community.

Jeevan Foundation Further commits for the national integrity and safeguarding the ethnic minorities from the all the social risks.

Jeevan Foundation Founder: The Benefactor of Love: Kumaresan Duraisamy, popularly known as ‘Napolean’ has laid the foundation stone of Mayopathy. His contribution to the society and Tamil Cinema has been outstanding and appreciative. He has been an inspiration to many children and works for the betterment of their future through innovative ways. Mayopathy, the Institute for Muscular Dystrophy is his dream come true project that voices the need of the young masses, also influencing their lives in various ways.

JEEVAN FOUNDATION ORGANIZATION MANAGEMENT STRUCTURE

Governing body (office bearers)

• Board of Trustees (CHAIRMAN)
• Managing Trustee
• Secretary
• Treasurer
• Senior Programme Manager

Functional Team

• Programme Officer
• Health division
• Education & literacy division
• Natural Resource Management division
• ICT division
• Environmental Protection division
• Child Protection division
• Social Protection
• HRD and HRM division
• Research and Development division
• Agriculture development division

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Mayopathy Kappagam

Mayopathy Kappagam is a  Muscular Dystrophy & Research Centre, an exclusive first kind of centre, is located at a serene, pollution-free and nature-rich environment in Veeravanallur, a small hamlet in Tirunelveli district of Tamil Nadu, India. It is a Non-Government Organisation and non profit organisation and it is registered under tamil nadu PWD Act 41/2010

Tel: +91-4634-287858
Mobile number: 9842372250

Address:

Shri.karumaari Amman kovil Opp.,

Palai to Ambai Road,

Vellanguli,Veeravanallur ,

Ambasamuthiram Taluk,

Tirunelveli 627426,

Tamil Nadu, India.

About Mayopathi Kappagam: 

Myopathy Kappagam In Tirunelveli ,

j.Ramasamy's mayopathy clinic veeravanallur

The main objective of this centre is to provide Medical and holistic rehabilitation service by a multidisciplinary team for the persons suffering from muscular dystrophy and help them lead their lives with confidence and determination. It throws light in medical field through the constant and consistent research in exploring the causes and solution for the prevention of Muscular Dystrophy.